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God's Politics

Ending AIDS’ Stigma

by César Baldelomar 11-03-2009

President Obama and his administration were busy this past Friday. The president signed into legislation The Ryan White HIV/AIDS Treatment Extension Act, which according to CNN.com, “authorizes a 5 percent annual increase in federal support over the next four years. Funding under the law is scheduled to rise from more than $2.5 billion in fiscal year 2010 to nearly $3 billion in fiscal year 2013.” On the same day, he announced that in 2010 he will eliminate a 22-year-old regulation that bars individuals with HIV/AIDS from entering the United States.

Obama’s decisions with regard to HIV/AIDS, which we should commend on all levels, are a far cry from earlier administrations that refused to address the HIV/AIDS pandemic in the United States and across the world. (One exception is George W. Bush’s commitment to funding AIDS treatment, malaria prevention, job creation, and increased educational opportunities for Africans. President Bush should be praised on this front as well.)  Failing to address an issue tends to exacerbate it. Silence on the HIV/AIDS issue also serves to stigmatize those with the ailment. The 80’s and 90’s witnessed horrible religious and political demonstrations against those with HIV/AIDS. Demonstrators condemned the diseased individuals as homosexuals deserving their fate. Some even went as far as calling HIV/AIDS the gay disease that God created to eradicate those suffering from it. (The critically acclaimed Philadelphia, starring Tom Hanks and Denzel Washington, is an excellent movie on the social stigma surrounding HIV/AIDS during the 90’s.)

These demonstrators were not entirely at fault for their ignorance and premature association of HIV/AIDS with homosexuality. The government failed to fund research for HIV/AIDS treatment, and the government’s chief executive officer failed to mention the disease. Many consequently feared HIV/AIDS and viewed as a shameful disease that speaks of one’s moral condition. If one had HIV/AIDS, they thought, one was engaging in immorally illicit acts that threatened the vitality of the community.

Eventually, however, awareness of HIV/AIDS progressed and many stopped believing HIV/AIDS simply as a gay disease. Indeed, it affects everyone, from gay to straight to bisexual to African-Americans to Latin@s to Caucasians. It even affected children who either were born with HIV/AIDS or acquired it through unscreened blood transfusions and organ donations. Many of us are familiar with the Ryan White case as an example of a blood transfusion gone awry. White, a hemophiliac who in his early teens contracted HIV from a blood transfusion, faced marginalization at his own school during the early 1980’s, when little was known about the disease. He suffered physically, emotionally, and spiritually during his lifetime, just as many who are infected today do. Yet, he refused to remain silent by touring schools around the country in an effort to raise awareness. With all the advances in medical research on HIV/AIDS today, however, stigma still accompanies the disease.

This makes the decision to lift the ban all the more crucial. “We talk about reducing the stigma of this disease, yet we’ve treated the visitor living with it as a threat,” President Obama said at a White House press conference on Friday. “If we want to be the global leader in combating HIV/AIDS, we need to act like it.” Again, the President is reminding U.S. citizens of their responsibility in making this country more humane and just. No longer should we look upon the person with HIV/AIDS as an abomination to be kept away as far as possible.

The Centers for Disease Control and Prevention estimate that one million people in the United States live with HIV/AIDS, but almost one-quarter of these are unaware they have it. The stigma of the disease no doubt plays a role in the decision to avoid getting tested. But above all, many continue to be uninformed about the ways HIV/AIDS is transmitted. Teaching high school, I distinctly remember during a class discussion when a sixteen year-old boy asserted with the utmost confidence that HIV was only transmitted through anal intercourse. I quickly responded that this is just one of the many ways HIV is transmitted. This led me to question whether parents, religious institutions, and schools are talking about the risks of HIV/AIDS infection among the young. Or is the disease still too taboo to discuss? Not discussing will only foster a culture of misunderstanding, shame, hate for others, and death.

I applaud Obama and his administration for their heroic decisions. Not only will the government provide more funding to those who can’t afford treatment, but it will also, through its lifting of the ban, remove some of the stigma unjustly surrounding this disease. The United States is one of only twelve countries that discriminate against visitors with HIV/AIDS. Thanks to the commonsense and goodwill of the President and his administration, the US will no longer be on this unjust list. These two decisions, to be sure, are two small steps in the fight against HIV and its social stigma, but it is a step forward in an issue that many often ignored and, unfortunately, continue to disregard at the peril of future generations.

portrait-cesar-baldelomarCésar J. Baldelomar is a graduate student at Harvard Divinity School. He is also the executive director of Pax Romana Center for International Study of Catholic Social Teaching. You can visit César at his  Web site (www.cesarjb.org) and read his blogs at www.holisticthoughts.com.

Categories: Global Issues, Health
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  • Drixtrious
    To say the truth, Hospitals are like massive, ominous corporations; If one does not have insurance, then one is looking at debt. When one has insurence, the insurence company pays for it. That's why republicans question the medicare bill.
    What If Obama is just the only viel behind the actual coruption. Come on, OBAMA WANTS TO GIVE UP AMERICAN NUCLEAR WEAPONS AND TELLS OTHER COUNTRIES TO DO THE SAME? That's the stupidest move any president has done, which is giving up their back bone of a stable country. Without fear, There will be more chais then there is today.
    Obama is so stupid he makes bush look like a genus at being a president. Obama was shut down by the pope when he had a talk with him, forcing him to convert to christianity. Obama may be a great speaker, but he has no actual brain in him. the smoking when he was youngkilled the majority of his brain cells and can only talk. He would probably studder when asked a question that of which he cannot talk out.
    Obama should learn from history and not leave Iraq and Afhganistan by themselves; There will be an ominous massacre similar to the one in Vietnam. American lives are just as important do not get me wrong; it's just we have the responsibility to stop being selfish and get America to be more attentive in geography, listening, and awareness, even though America is the #1 at givihng when it comes to ranking and generousity.
    So, does socialism work? IT HAS NEVER WORKED AND NEVER WILL!!!!!!!!!
    It's obvious that Obama is trying to take away the people's rights by making America vunerable for an assault. Sorry to burst ur bubble ut even a hobo can recieve an award for giving hope to the people saying that he will do a better job; it's more of an investmen trather than an achievement. Regan stopped the Cold War and what happened to his nobel piece prize?
  • If a person doesn't know he has HIV and has never been ill, how would he know he has HIV/AIDS?

    That sounds like a moot point. How would a person with HIV avoid ever getting sick?
  • Joe_Allen_Doty
    If a person doesn't know he has HIV and has never been ill, how would he know he has HIV/AIDS?

    When I took the AIDS Educator training, the state health nurse teaching the course illustration HIV infection with the example of an iceberg. An iceberg could look small when it was only a fourth of it above the surface of the water.
  • Hmm, I thought that was a good adjective - dern.

    Celibate marriage sounds like a couple who live in the same place and sleep in separate bedrooms like house mates while having a legally filed marriage license.

    Sounds like you got the idea anyway...

    EDIT:

    Don't you mean members of the couple getting married should be sexually chaste (aka virgins) on their wedding day?

    No, that doesn't serve the purposes of not spreading HIV/AIDS.
  • Joe_Allen_Doty
    I haven't been involved in HIV/AIDS ministry for several years now. I did take a state health department AIDS Educator Workshop which lasted several days here in Tulsa in 1993.

    Safer sex practices are important, infected with HIV or not. But, if one's immune system is perfectly healthy and the person is also completely sober, said person's chances of getting HIV from an infected partner and not using protection is almost non-existent. But, one should take chances.

    And, it has been scientifically proven that some people don't have the receptors for the HIV (virus) on their T-cells. Some have tried to claim that is a defect; but, I prefer to say those who have receptors to which viruses can attach themselves have defective immune systems.

    I mentioned my partner above and I have never had HIV. We were together for more than 2 years before we decided on safer practices. Apparently he had contracted HIV 3 years before I met him.
  • Joe_Allen_Doty
    Celibate marriage is an oxymoron. That's because "celibate" means "not married."

    Don't you mean members of the couple getting married should be sexually chaste (aka virgins) on their wedding day?

    Celibate marriage sounds like a couple who live in the same place and sleep in separate bedrooms like house mates while having a legally filed marriage license.
  • Well, I don't know about the chapel,

    Right or wrong, sex is our culture's cornerstone for marriage according to both genders. Part of the reason is that couples want kids, which is why I suggested adoption - but that doesn't solve everything.
  • Joe_Allen_Doty
    One can be infected with the virus known as HIV; but, one cannot be diagnosed with having an AIDS symptomatic/opportunistic disease unless one has contracted HIV first.

    But, every one of the HIV/AIDS opportunistic diseases can be contracted by a people who have suppressed immune systems and never have been exposed to HIV.

    My late partner/husband had HIV and an AIDS "symptomatic disease" which was a viral brain infection known as PML for short (the 2nd and 3rd words are very long). But, the specialist with brain diseases a the hospital clinic said that Ed having HIV had no connection with the PML. That's because Ed was apparently exposed to the virus that causes PML when he was a boy.
  • nuclearferret
    Well, I don't know about the chapel, what sane uninfected person would have sexual relations with an infected person?
  • How can you remove stigma from a disease which infects one's spouse and children? While obviously we shouldn't see them as less than human, we will naturally regard them as sexual lepers (perhaps minus the connotation of sin). People will inevitably quarantine known carriers from themselves and perhaps their friends and neighbors, at least in the chapel and the bed. And the carriers will likely react by hiding the fact and thereby spreading the disease.

    We could promote celibate marriages and adoption among the HIV/AIDS community in an attempt to lessen the stigma, but even this conveys a message of inferiority.
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